The Canadian Researchers at the End of Life Network (CARENET) is a group of health care professionals from across the country that collaborate with each other to understand and improve palliative and end-of-life care.

The McGill Quality of Life Questionnaire has been widely used with people with life-threatening illnesses without modification since its publication in 1996. With use, areas for improvement have emerged; therefore, various minor modifications were tested over time.

To revise the McGill Quality of Life Questionnaire (McGill Quality of Life Questionnaire–Revised) while maintaining or improving its psychometric properties and length, keeping it as close as possible to the McGill Quality of Life Questionnaire to enable reasonable comparison with existing McGill Quality of Life Questionnaire literature.

More about the questionnaire

What matters the most in end-of-life care: Perceptions of seriously ill patients and their family members.
CMAJ. 
Heyland D, Dodek P, Rocker G, Groll D, Gafni A, Pichora D, Shortt S, Tranmer J, Lazar N, Kutsogiannis J, Lam M, for the Canadian Researchers at the End of Life Network (CARENET).
Feb 28, 2006.

CARENET: A resource for researchers in end-of-life care.
Can J Geriatr.
Frank C, Heyland D, Pichora D.
2006.

Satisfaction with end of life care: A longitudinal study of patients and their family caregivers in the last months of life.
J Palliative Care.
Heyland DK, Frank C, Tranmer J, Paul N, Pichora D, Jiang X, Day A, for the Canadian Researchers at the End of Life Network (CARENET).
Winter 2009.

Moral distress in intensive care unit professionals is associated with profession, age, and years of experience
Journal of Critical Care
Peter M. Dodek, MD, MHS, Hubert Wong, PhD, Monica Norena, MS, Najib Ayas, MD, MPH, Steven C. Reynolds, MD, Sean P. Keenan, MD, MSc, Ann Hamric, RN, PhD, Patricia Rodney, RN, PhD, Miriam Stewart, RN, BSN, BA, Lynn Alden, PhD
February 2016.

Educating medical residents in end-of-life care: Results of a national survey.
J Palliat Med.
Schroder C, Heyland D, Jiang X, Rocker G, Dodek P, for the Canadian Researchers at the End of Life Network (CARENET).
May 2009.

Recovery after critical illness in patients aged 80 years or older: a multi-center prospective observational cohort study. 
Intensive Care Med.
Heyland DK, Garland A, Bagshaw SM, Cook D, Rockwood K, Stelfox HT, Dodek P, Fowler RA, Turgeon AF, Burns K, Muscedere J, Kutsogiannis J, Albert M, Mehta S, Jiang X, Day AG.   
November 2015.

Defining priorities for improving end-of-life care in Canada.
CMAJ.
Heyland DK, Cook DJ, Rocker GM, Dodek PM, Kutsogiannis DJ, Skrobik Y, Jiang X, Day AG, Cohen SR.
Nov. 9th, 2010.

The Very Elderly Admitted to ICU: A Quality Finish?
Crit Care Med. 
Heyland D, Cook D, Bagshaw SM, Garland A, Stelfox HT, Mehta S, Dodek P, Kutsogiannis J, Burns K, Muscedere J, Turgeon AF, Fowler R, Jiang X, Day AG;Canadian Critical Care Trials Group; Canadian Researchers at the End of Life Network.  
July 2015.

 

 

Admission of the very elderly to the intensive care unit: family members' perspectives on clinical decision-making from a multicenter cohort study. 
Palliat Med.
Heyland DK, Dodek P, Mehta S, Cook D, Garland A, Stelfox HT, Bagshaw SM, Kutsogiannis DJ, Burns K, Muscedere J, Turgeon AF, Fowler R, Jiang X, Day AG; Canadian Critical Care Trials Group and Canadian Researchers at End of Life Network (CARENET).
2015 Apr.

 

Just ask: discussing goals of care with patients in hospital with serious illness.
CMAJ.
You JJ, Fowler RA, Heyland DK; Canadian Researchers at the End of Life Network (CARENET)
2014.

Predicting Performance Status 1 Year After Critical Illness in Patients 80 Years or Older: Development of a Multivariable Clinical Prediction Model.
Crit Care Med.
Heyland DK, Stelfox HT, Garland A, Cook D, Dodek P, Kutsogiannis J, Jiang X, Turgeon AF, Day AG; Canadian Critical Care Trials Group and the Canadian Researchers at the End of Life Network.
April 13, 2016 

Enhancing the quality of end-of-life care in Canada.
CMAJ.
Cook D, Rocker G, Heyland DK.
Nov 5, 2013

 

 

End of life care in acute care hospitals in Canada. A quality finish? 
J Palliat Care.
Heyland D, Groll D, Rocker G, Dodek P, Gafni A, Tranmer J, Pichora D, Lazar N, Kutsogiannis J, Shortt S, Lam M, for the Canadian Researchers at the End of Life Network (CARENET).  
Autumn 2005.

What do Canadians think of advance care planning? Findings from an online opinion poll.
BMJ Supportive Palliative Care.
Teixeira A, Hanvey L, Tayler, C, Heyland DK et al. 
Oct 4, 2013.

Understanding cardiopulmonary resuscitation decision making: Perspectives of seriously ill hospitalized patients and family members.
Chest.
Heyland D, Frank C, Groll, D, Pichora D, Dodek P, Rocker G, Gafni A for the Canadian Researchers at the End of Life Network (CARENET).   
August 2006.

 

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